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Resources provide information on what self-directed services are, why they are important, waivers, recruiting, hiring, training and managing staff, budgeting and relevant policies are particularly welcome. All resources are screened by the Alliance to ensure the following:

  • They are relevant to the topic of self-directed services
  • They are factually accurate and current
  • They are respectful of the rights, dignity and full humanity of all people
  • They are accessible and usable

COVID-19 Specific Resources

Disability Justice & COVID-19 Webinar: Learn about the intersection of race, anti-Blackness, class, and disability. It featured Dorian Taylor, Elandria Williams, Lateef Mcleod, Leroy Moore Jr, and chat moderation by Cyree Jarelle Johnson. (May 8, 2020)

How service agencies should address COVID-19 Webinar: Training hosted by the Alliance for Citizen Directed Supports and Values Into Action (March 24, 2020)

Response to COVID-19 Resource Guide: This guide from our Member Organization Values Into Action is continuously updated with resources to help you with self-direction and to stay connected (virtually) to your community. 

Why States Should Expand Self-Direction in Response to COVID-19 In response to the current coronavirus crisis, the Centers for Medicare and Medicaid Services (CMS) is currently encouraging states to expand or adopt self-direction in its Appendix K: Emergency Preparedness and Response Instructions for 1915(c) waivers.

Plain Language Tips For Working With Support Staff During COVID-19: Need help communicating with your support staff about issues related to COVID-19? Or do you provide supports and want to better understand and communicate with the people you support? This guide will help you!

California State Council on Developmental Disabilities COVID-19 Resources in English/Español: On their website you can find bilingual resources including links to their four-part Youtube series “Safety Tips Videos from Self-Advocates“/”Consejos de seguridad de COVID-19 de auto-defensores en español.” They also have a large collection of written materials in Plain Language.

COVID-19 Case Tracker
This resource from Autistic Self Advocacy Network can be used to to track COVID-19 cases for people with disabilities, and is more comprehensive than government data. It can be used to advocate for self-direction and illustrate the harms of institutionalization

Interactive Map of State Cases and Deaths Attributed to Long-Term Care Facilities: This map by KFF uses data reported directly by states (versus through news outlets) through either state COVID-19 reporting or state press releases

General Resources:

Consumer-Directed Personal Care Attendent Handbook: A handbook for DSP’s and PCA’s supporting people with self-directed services.

Why Life in the Community matters: Video on why life in the community is important for everyone

My Voice Counts: Self Advocates’ Guide: This is an easy to read guide to supported decision-making

National Resource Center for Supported Decision-Making: Offers a state-by-state guide to relevant laws

Case for Inclusion: The Case for Inclusion 2020 is the most comprehensive assessment available of how well programs in all 50 states and the District of Columbia are serving people with intellectual and developmental disabilities.

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